Meet July's Legendairy Little, William

Each month we donate a portion of our proceeds to a child with medical needs through the 

Legendairy Littles program. During the month of July 2024, we will be featuring William.

At two months old, William’s parents had a feeling that something wasn’t right. He would not track with his eyes and would never look at anyone. Unfortunately, their pediatrician didn’t feel the need to pursue these concerns. However, William’s parents pushed to have him seen at a Children’s Hospital where a CT scan was completed. It was during this scan that it was discovered that William’s brain didn’t develop as it should have in the womb. This heartbreaking and unimaginable news was met with a remarkable medical team including specialists and therapists who have been a blessing to William and his family.

After additional testing and MRIs, William was diagnosed with several diagnoses including: 

Pachygyria, Polymicrogyria, Schizencephaly, Microcephaly, Congenital hypertonia, and a 

genetic condition called Chondrodysplasia punctata. William’s mom has done a remarkable job at documenting their unique journey and sharing about his conditions on their blog. If you would like to learn more about each of these and resources if you know someone walking a similar journey, please look at their site. 

Although the family doesn’t understand all that these conditions mean for William, they are taking each day on it’s own and doing whatever they can to provide. During all of the testing, William’s mom would pump for his nutrition. 

William has a love for books and anything that turns and lights up. His piano is one toy where he uses the most movement from his left hand. William loves to listen to Baby Einstein and Ten Thousand Reasons by Matt Redmand. Ten Thousand Reasons is frequently sung to him during ER visits to help calm him down.

During the month of July, Legendairy Milk will be making a donation to William’s family to help with his ongoing medical expenses. You can donate directly to William’s family through their GoFundMe. If you would like to follow William’s story, their family blog is located here.